Parental strategies that support adults with intellectual disabilities to explore decision preferences, constraints and consequences.
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| Title: | Parental strategies that support adults with intellectual disabilities to explore decision preferences, constraints and consequences. |
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| Authors: | Bigby, Christine, Douglas, Jacinta, Smith, Elizabeth, Carney, Terry, Then, Shih-Ning, Wiesel, Ilan |
| Source: | Journal of Intellectual & Developmental Disability. Jun2022, Vol. 47 Issue 2, p165-176. 12p. 2 Diagrams. |
| Subjects: | Parent attitudes, Social support, Human rights, Patient decision making, Parents of children with disabilities, Research methodology, Social constructionism, Mathematical models, Interviewing, Psychosocial factors, Theory, People with intellectual disabilities, Family relations, Adults |
| Abstract: | Supporting participation in decision making is complex, dynamic and multifactorial. The aim of this study was to understand more about the difficulties parents of adults with intellectual disabilities experienced in providing decision support and their strategies for resolving them. Participants were 23 parents who regularly provided decision support for their adult with intellectual disabilities. Most of the adults (19) lived at home. Parents participated in semi-structured interviews at least three times during the study. We applied a social-constructionist theoretical perspective and a template approach for analysis. Findings fell into three core categories, making the right decision, factors that made decision support difficult, and strategies to manage uncertainty, which included controlling, influencing, expanding the adult's horizons and enabling risk. The knowledge gained will help in building the capacity of parents to provide decision support that better understands and respects the will and preferences of the person they support. [ABSTRACT FROM AUTHOR] |
| Copyright of Journal of Intellectual & Developmental Disability is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Database: | Psychology and Behavioral Sciences Collection |
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| Abstract: | Supporting participation in decision making is complex, dynamic and multifactorial. The aim of this study was to understand more about the difficulties parents of adults with intellectual disabilities experienced in providing decision support and their strategies for resolving them. Participants were 23 parents who regularly provided decision support for their adult with intellectual disabilities. Most of the adults (19) lived at home. Parents participated in semi-structured interviews at least three times during the study. We applied a social-constructionist theoretical perspective and a template approach for analysis. Findings fell into three core categories, making the right decision, factors that made decision support difficult, and strategies to manage uncertainty, which included controlling, influencing, expanding the adult's horizons and enabling risk. The knowledge gained will help in building the capacity of parents to provide decision support that better understands and respects the will and preferences of the person they support. [ABSTRACT FROM AUTHOR] |
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| ISSN: | 13668250 |
| DOI: | 10.3109/13668250.2021.1954481 |
