Whose voice is it anyway? Adults with intellectual disabilities and future planning: A scoping review of qualitative studies.
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| Title: | Whose voice is it anyway? Adults with intellectual disabilities and future planning: A scoping review of qualitative studies. |
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| Authors: | Belperio, I. (AUTHOR), Walker, R. (AUTHOR), Bigby, C. (AUTHOR), Wiesel, I. (AUTHOR), Rillotta, F. (AUTHOR), Hutchinson, C. (AUTHOR) |
| Source: | Journal of Intellectual & Developmental Disability. Jun2024, Vol. 49 Issue 2, p215-228. 14p. |
| Subjects: | Parents, Mental health services, CINAHL database, Descriptive statistics, Intellectual disabilities, Health planning, Family attitudes, Systematic reviews, MEDLINE, Attitudes of medical personnel, Data analysis software |
| Abstract: | Future planning is a way of supporting people with intellectual disabilities and their families to think about their support needs as both groups age. Adults with intellectual disabilities, family members, and service providers are often involved in planning processes. However, it is unclear whose perspectives dominate in the literature and how these might vary. A scoping review of qualitative studies (2012–2022) was undertaken to identify which perspectives are present in research on adults with intellectual disabilities and future planning, and to examine key aspects of their future planning experience. The perspectives of parents and siblings predominate in the research. Those of adults with intellectual disabilities and service providers are underrepresented. The views of adults with intellectual disabilities need to be elevated in future planning and they need to be meaningfully involved in planning processes. Focus on the experiences of service providers is likewise needed. [ABSTRACT FROM AUTHOR] |
| Copyright of Journal of Intellectual & Developmental Disability is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Database: | Psychology and Behavioral Sciences Collection |
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| Abstract: | Future planning is a way of supporting people with intellectual disabilities and their families to think about their support needs as both groups age. Adults with intellectual disabilities, family members, and service providers are often involved in planning processes. However, it is unclear whose perspectives dominate in the literature and how these might vary. A scoping review of qualitative studies (2012–2022) was undertaken to identify which perspectives are present in research on adults with intellectual disabilities and future planning, and to examine key aspects of their future planning experience. The perspectives of parents and siblings predominate in the research. Those of adults with intellectual disabilities and service providers are underrepresented. The views of adults with intellectual disabilities need to be elevated in future planning and they need to be meaningfully involved in planning processes. Focus on the experiences of service providers is likewise needed. [ABSTRACT FROM AUTHOR] |
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| ISSN: | 13668250 |
| DOI: | 10.3109/13668250.2023.2293334 |
