Patient Activation and Shared Decision‐Making Among Hispanics/Latinos With Metastatic Cancer: A Qualitative Study.
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| Title: | Patient Activation and Shared Decision‐Making Among Hispanics/Latinos With Metastatic Cancer: A Qualitative Study. |
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| Authors: | Meguro, Julia (AUTHOR), Khawand‐Azoulai, Mariana (AUTHOR), Medina, Heidy N. (AUTHOR), Pons, Magela (AUTHOR), Huber, Michael T. (AUTHOR), Penedo, Frank J. (AUTHOR), Moreno, Patricia I. (AUTHOR) |
| Source: | Psycho-Oncology. Apr2025, Vol. 34 Issue 4, p1-7. 7p. |
| Subjects: | Patient participation, Hispanic Americans, Metastasis, Medical communication, Consensus (Social sciences), Qualitative research, Palliative treatment |
| Abstract: | Background: Patient activation is established when patients are equipped with the necessary knowledge, skills, and motivation to meaningfully participate in managing their health and, along with shared decision‐making, improves clinical outcomes like treatment adherence. Little is known regarding patient activation among Hispanics/Latinos with metastatic cancer, who report worse quality of life and symptom burden compared to non‐Hispanic/Latino Whites. Aims: This study aimed to characterize barriers and facilitators to patient activation and shared decision‐making among English‐ and Spanish‐speaking Hispanics/Latinos with metastatic cancer. Methods: Three, 2‐h focus groups with Hispanics/Latinos with metastatic solid tumors (N = 22) were audio‐recorded and transcribed. Semi‐structured interviews addressed experiences living with metastatic cancer, palliative care beliefs, and communication with healthcare team. Barriers and facilitators were identified through secondary analysis of interviews. Results: Barriers included: (a) feeling overwhelmed by treatment decision‐making; (b) lack of clarity regarding treatment and diagnosis; (c) lack of symptom management resources; and (d) concerns regarding English fluency and medical terminology. Facilitators included: (a) self‐advocacy for treatment options and quality of life resources; (b) feeling comfortable asking care team questions; (c) having a skilled support system; and (d) avoiding unhelpful medical information. Patient activation levels varied, but all participants expressed a desire to be proactively included in decisions throughout care. Conclusions: Results suggest that patient activation may be promoted in this population through the provision of information/resources that are timely, accessible, and relevant to their care needs and active inclusion of patients in decision‐making. Findings will guide culturally‐adapted interventions that increase patient activation and shared decision‐making. [ABSTRACT FROM AUTHOR] |
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| Database: | Psychology and Behavioral Sciences Collection |
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| Abstract: | Background: Patient activation is established when patients are equipped with the necessary knowledge, skills, and motivation to meaningfully participate in managing their health and, along with shared decision‐making, improves clinical outcomes like treatment adherence. Little is known regarding patient activation among Hispanics/Latinos with metastatic cancer, who report worse quality of life and symptom burden compared to non‐Hispanic/Latino Whites. Aims: This study aimed to characterize barriers and facilitators to patient activation and shared decision‐making among English‐ and Spanish‐speaking Hispanics/Latinos with metastatic cancer. Methods: Three, 2‐h focus groups with Hispanics/Latinos with metastatic solid tumors (N = 22) were audio‐recorded and transcribed. Semi‐structured interviews addressed experiences living with metastatic cancer, palliative care beliefs, and communication with healthcare team. Barriers and facilitators were identified through secondary analysis of interviews. Results: Barriers included: (a) feeling overwhelmed by treatment decision‐making; (b) lack of clarity regarding treatment and diagnosis; (c) lack of symptom management resources; and (d) concerns regarding English fluency and medical terminology. Facilitators included: (a) self‐advocacy for treatment options and quality of life resources; (b) feeling comfortable asking care team questions; (c) having a skilled support system; and (d) avoiding unhelpful medical information. Patient activation levels varied, but all participants expressed a desire to be proactively included in decisions throughout care. Conclusions: Results suggest that patient activation may be promoted in this population through the provision of information/resources that are timely, accessible, and relevant to their care needs and active inclusion of patients in decision‐making. Findings will guide culturally‐adapted interventions that increase patient activation and shared decision‐making. [ABSTRACT FROM AUTHOR] |
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| ISSN: | 10579249 |
| DOI: | 10.1002/pon.70145 |
