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Life after meningitis: a qualitative study exploring survivors' experience of living with sequelae.

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Title: Life after meningitis: a qualitative study exploring survivors' experience of living with sequelae.
Authors: Balint, Chris (AUTHOR), Deary, Vincent (AUTHOR), Rodrigues, Angela M. (AUTHOR)
Source: Psychology & Health. Dec2025, Vol. 40 Issue 12, p2036-2054. 19p.
Subjects: Self-evaluation, Psychotherapy, Empathy, Qualitative research, Meningitis, Judgment sampling, Anxiety, Self-control, Thematic analysis, Quality of life, Convalescence, Patients' attitudes, Blogs, Mental depression, Disease complications
Abstract: Background: Around twenty percent of meningitis survivors experience after-effects. However, very little research on their psychological impact has been conducted. This report details a small explorative investigation into these psychological impacts. Objective: To explore the impact sequelae have on the meningitis survivors affected. Methods and measures: Thematic analysis of one-hundred individual user's blog posts, self-reporting one or more sequelae after a diagnosis of meningitis. Results: Blog posters' experiences varied greatly. Common trends in experience were mapped onto three themes. 'Struggling to Adjust to the New Normal' captures blog posters' struggles in returning to their lives post-hospitalization. 'Navigating Possibilities for Positivity' explores how blog posters either reported positive change due to their illness experience or felt a pressure, or inability, to do so. 'The Impact of Knowledge and Support' overarching two sub-themes; 'Lack of Awareness Causing Further Suffering' and 'Validation Leads to Narrative Shift'. These sub-themes contrast differences in experience blog posters reported, with and without knowledge, of the cause of their symptoms and support in dealing with the resulting difficulties. Conclusions: Consistent and structured after-care would benefit patients experiencing sequelae. Suggestions of a possible format this could take are put forward. In addition, self-regulatory models of illness perception help explain some variations in blog posters experiences, with possible intervention plans based on these models also suggested. However, limitations, including the comparatively small and highly selected sample, mean that further research is necessary to validate the findings and assess their validity, widespread applicability, and financial feasibility. [ABSTRACT FROM AUTHOR]
Copyright of Psychology & Health is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Label: Title
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  Data: Life after meningitis: a qualitative study exploring survivors' experience of living with sequelae.
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  Data: <searchLink fieldCode="AR" term="%22Balint%2C+Chris%22">Balint, Chris</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Deary%2C+Vincent%22">Deary, Vincent</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Rodrigues%2C+Angela+M%2E%22">Rodrigues, Angela M.</searchLink> (AUTHOR)
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  Data: <searchLink fieldCode="JN" term="%22Psychology+%26+Health%22">Psychology & Health</searchLink>. Dec2025, Vol. 40 Issue 12, p2036-2054. 19p.
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  Data: <searchLink fieldCode="DE" term="%22Self-evaluation%22">Self-evaluation</searchLink><br /><searchLink fieldCode="DE" term="%22Psychotherapy%22">Psychotherapy</searchLink><br /><searchLink fieldCode="DE" term="%22Empathy%22">Empathy</searchLink><br /><searchLink fieldCode="DE" term="%22Qualitative+research%22">Qualitative research</searchLink><br /><searchLink fieldCode="DE" term="%22Meningitis%22">Meningitis</searchLink><br /><searchLink fieldCode="DE" term="%22Judgment+sampling%22">Judgment sampling</searchLink><br /><searchLink fieldCode="DE" term="%22Anxiety%22">Anxiety</searchLink><br /><searchLink fieldCode="DE" term="%22Self-control%22">Self-control</searchLink><br /><searchLink fieldCode="DE" term="%22Thematic+analysis%22">Thematic analysis</searchLink><br /><searchLink fieldCode="DE" term="%22Quality+of+life%22">Quality of life</searchLink><br /><searchLink fieldCode="DE" term="%22Convalescence%22">Convalescence</searchLink><br /><searchLink fieldCode="DE" term="%22Patients'+attitudes%22">Patients' attitudes</searchLink><br /><searchLink fieldCode="DE" term="%22Blogs%22">Blogs</searchLink><br /><searchLink fieldCode="DE" term="%22Mental+depression%22">Mental depression</searchLink><br /><searchLink fieldCode="DE" term="%22Disease+complications%22">Disease complications</searchLink>
– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: Background: Around twenty percent of meningitis survivors experience after-effects. However, very little research on their psychological impact has been conducted. This report details a small explorative investigation into these psychological impacts. Objective: To explore the impact sequelae have on the meningitis survivors affected. Methods and measures: Thematic analysis of one-hundred individual user's blog posts, self-reporting one or more sequelae after a diagnosis of meningitis. Results: Blog posters' experiences varied greatly. Common trends in experience were mapped onto three themes. 'Struggling to Adjust to the New Normal' captures blog posters' struggles in returning to their lives post-hospitalization. 'Navigating Possibilities for Positivity' explores how blog posters either reported positive change due to their illness experience or felt a pressure, or inability, to do so. 'The Impact of Knowledge and Support' overarching two sub-themes; 'Lack of Awareness Causing Further Suffering' and 'Validation Leads to Narrative Shift'. These sub-themes contrast differences in experience blog posters reported, with and without knowledge, of the cause of their symptoms and support in dealing with the resulting difficulties. Conclusions: Consistent and structured after-care would benefit patients experiencing sequelae. Suggestions of a possible format this could take are put forward. In addition, self-regulatory models of illness perception help explain some variations in blog posters experiences, with possible intervention plans based on these models also suggested. However, limitations, including the comparatively small and highly selected sample, mean that further research is necessary to validate the findings and assess their validity, widespread applicability, and financial feasibility. [ABSTRACT FROM AUTHOR]
– Name: AbstractSuppliedCopyright
  Label:
  Group: Ab
  Data: <i>Copyright of Psychology & Health is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=pbh&AN=189131973
RecordInfo BibRecord:
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    Identifiers:
      – Type: doi
        Value: 10.1080/08870446.2024.2373371
    Languages:
      – Code: eng
        Text: English
    PhysicalDescription:
      Pagination:
        PageCount: 19
        StartPage: 2036
    Subjects:
      – SubjectFull: Self-evaluation
        Type: general
      – SubjectFull: Psychotherapy
        Type: general
      – SubjectFull: Empathy
        Type: general
      – SubjectFull: Qualitative research
        Type: general
      – SubjectFull: Meningitis
        Type: general
      – SubjectFull: Judgment sampling
        Type: general
      – SubjectFull: Anxiety
        Type: general
      – SubjectFull: Self-control
        Type: general
      – SubjectFull: Thematic analysis
        Type: general
      – SubjectFull: Quality of life
        Type: general
      – SubjectFull: Convalescence
        Type: general
      – SubjectFull: Patients' attitudes
        Type: general
      – SubjectFull: Blogs
        Type: general
      – SubjectFull: Mental depression
        Type: general
      – SubjectFull: Disease complications
        Type: general
    Titles:
      – TitleFull: Life after meningitis: a qualitative study exploring survivors' experience of living with sequelae.
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            NameFull: Balint, Chris
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            NameFull: Deary, Vincent
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            NameFull: Rodrigues, Angela M.
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            – D: 01
              M: 12
              Text: Dec2025
              Type: published
              Y: 2025
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              Value: 40
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