Fostering self-advocacy development in service-based self-advocacy groups.

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Bibliographic Details
Title: Fostering self-advocacy development in service-based self-advocacy groups.
Authors: Mc Carthy, John (AUTHOR), McTaggart, Valerie (AUTHOR)
Source: Journal of Intellectual & Developmental Disability. Dec2025, Vol. 50 Issue 4, p398-410. 13p.
Subjects: Human services programs, Qualitative research, Self-efficacy, Interviewing, Descriptive statistics, Intellectual disabilities, Research methodology, Self advocacy, Social support, Data analysis software, Special education
Abstract: Background: While the importance of self-advocacy for those with an intellectual disability is well recognised, little is known about how organisations can support self-advocacy development by implementing self-advocacy groups. Method: This inclusive research study collected empirical data from fourteen self-advocates, two managers, three group supporters, and one advocacy coordinator, all experienced and involved in an established not-for-profit service-based self-advocacy group. Results: Our findings identified several benefits of being involved in a self-advocacy group, including confidence-building, belonging, social inclusion, empowerment and affecting positive social change for the wider community. To ensure the success of self-advocacy groups, there must be "A Space and Place", "Meaningful Inclusion", and "Learning to Lead Opportunities". Conclusion: Despite the positive benefits associated with self-advocacy, challenges remain. Society's expectations about self-advocacy are often not translated into practice, inclusion can be superficial, and a balance between independence and assistance is difficult to achieve where support is required. [ABSTRACT FROM AUTHOR]
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Database: Psychology and Behavioral Sciences Collection
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Abstract:Background: While the importance of self-advocacy for those with an intellectual disability is well recognised, little is known about how organisations can support self-advocacy development by implementing self-advocacy groups. Method: This inclusive research study collected empirical data from fourteen self-advocates, two managers, three group supporters, and one advocacy coordinator, all experienced and involved in an established not-for-profit service-based self-advocacy group. Results: Our findings identified several benefits of being involved in a self-advocacy group, including confidence-building, belonging, social inclusion, empowerment and affecting positive social change for the wider community. To ensure the success of self-advocacy groups, there must be "A Space and Place", "Meaningful Inclusion", and "Learning to Lead Opportunities". Conclusion: Despite the positive benefits associated with self-advocacy, challenges remain. Society's expectations about self-advocacy are often not translated into practice, inclusion can be superficial, and a balance between independence and assistance is difficult to achieve where support is required. [ABSTRACT FROM AUTHOR]
ISSN:13668250
DOI:10.3109/13668250.2025.2474199