'Nobody wants to talk about that stuff': a qualitative investigation of the anticipated public perceptions of individuals with Inflammatory Bowel Disease.
Saved in:
| Title: | 'Nobody wants to talk about that stuff': a qualitative investigation of the anticipated public perceptions of individuals with Inflammatory Bowel Disease. |
|---|---|
| Authors: | Edwards, Elia-Jade (AUTHOR), Oaten, Megan (AUTHOR), Wishart, Darren (AUTHOR) |
| Source: | Psychology & Health. Jun2026, Vol. 41 Issue 6, p897-917. 21p. |
| Subjects: | Competency assessment (Law), Attitudes toward illness, Health status indicators, Qualitative research, Accessible design, Psychological distress, Research funding, Interviewing, Statistical sampling, Public opinion, Emotions, Inflammatory bowel diseases, Thematic analysis, Sound recordings, Quality of life, Research methodology, Patients' attitudes, Social stigma, Self-disclosure, Social participation, Social isolation |
| Geographic Terms: | Australia |
| Abstract: | Objective: Little research has explored in-depth qualitative opinions on anticipated public views of Inflammatory Bowel Disease (IBD) among those with the condition, and the potential impact of these views on wellbeing. This study explored the perceptions and reactions anticipated by those with IBD from the public (RQ1), and the impact these anticipated perceptions have on participants' physical and psychological health, and their quality of life (RQ2). Method: Twenty participants (aged 18–56 years) were recruited via Crohn's and Colitis Australia and online IBD support forums. Individual, semi-structured interviews were conducted with participants. To avoid researcher bias, two independent data coders conducted thematic analysis to identify themes and subthemes. Results: The themes identified by both coders were further examined and reported. Four themes were identified: (1) poor public awareness of IBD; (2) difficulties with disclosure; (3) emotional and social public reactions; and lastly, (4) 'self-exclusion'. Most participants indicated that their physical health and quality of life are not impacted by their anticipated views, however, some participants reported that their psychological health is impacted. Conclusion: This study uncovered the adverse impact of anticipated public views on psychological health. Regarding study implications, self-excluding behaviours should be routinely assessed in clinical practice. [ABSTRACT FROM AUTHOR] |
| Copyright of Psychology & Health is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Database: | Psychology and Behavioral Sciences Collection |
|
Full text is not displayed to guests.
Login for full access.
|
|
| Abstract: | Objective: Little research has explored in-depth qualitative opinions on anticipated public views of Inflammatory Bowel Disease (IBD) among those with the condition, and the potential impact of these views on wellbeing. This study explored the perceptions and reactions anticipated by those with IBD from the public (RQ1), and the impact these anticipated perceptions have on participants' physical and psychological health, and their quality of life (RQ2). Method: Twenty participants (aged 18–56 years) were recruited via Crohn's and Colitis Australia and online IBD support forums. Individual, semi-structured interviews were conducted with participants. To avoid researcher bias, two independent data coders conducted thematic analysis to identify themes and subthemes. Results: The themes identified by both coders were further examined and reported. Four themes were identified: (1) poor public awareness of IBD; (2) difficulties with disclosure; (3) emotional and social public reactions; and lastly, (4) 'self-exclusion'. Most participants indicated that their physical health and quality of life are not impacted by their anticipated views, however, some participants reported that their psychological health is impacted. Conclusion: This study uncovered the adverse impact of anticipated public views on psychological health. Regarding study implications, self-excluding behaviours should be routinely assessed in clinical practice. [ABSTRACT FROM AUTHOR] |
|---|---|
| ISSN: | 08870446 |
| DOI: | 10.1080/08870446.2025.2493872 |
