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Building a Sexual and Reproductive Health Module for Implementation in Early Psychosis Programs: A Co-creation Process: Création d'un module sur la santé sexuelle et reproductive à mettre en œuvre dans les programmes d'intervention précoce en cas de psychose : un processus de création conjointe

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Title: Building a Sexual and Reproductive Health Module for Implementation in Early Psychosis Programs: A Co-creation Process: Création d'un module sur la santé sexuelle et reproductive à mettre en œuvre dans les programmes d'intervention précoce en cas de psychose : un processus de création conjointe
Authors: Barker, Lucy C. (AUTHOR), Zaheer, Juveria (AUTHOR), Wong-Lee, Robyn (AUTHOR), Kearney, Hannah (AUTHOR), Ampofo, Augustina (AUTHOR), Bodogh, Victoria (AUTHOR), Dobinson, Cheryl (AUTHOR), Dmytryshyn, Robert (AUTHOR), Dunn, Sheila (AUTHOR), Foussias, George (AUTHOR), Kozloff, Nicole (AUTHOR), Lam, June Sing Hong (AUTHOR), Rodriguez, Ananka (NURSE), Sirotich, Frank (AUTHOR), Soklaridis, Sophie (AUTHOR), Villanueva, Victoria (AUTHOR), Voineskos, Aristotle N. (AUTHOR), Vigod, Simone N. (AUTHOR)
Source: Canadian Journal of Psychiatry. Jun2026, Vol. 71 Issue 6, p467-476. 10p.
Subjects: Reproductive health, Psychoses, Domestic violence, Sexual diversity, Youth health, Mental health services, Participatory design
Abstract (English): Background: Individuals with psychosis are at risk for adverse sexual and reproductive health (SRH) experiences, and for receiving suboptimal SRH care. Early psychosis intervention (EPI) programs offer an opportunity to address SRH early in the illness course, yet SRH is not currently part of routine EPI care. This project sought to develop a SRH module for women, transgender, and gender-diverse individuals for delivery within EPI care. Methods: To develop the SRH module, an integrated knowledge translation frame was used, informed by a community-based participatory action research approach. A working group was formed of diverse Youth Advisors (n = 3) and a Youth Engagement Specialist (n = 1) with lived experience with early psychosis, SRH experts (n = 3), mental health experts (n = 3), and research staff (n = 1). The working group met approximately biweekly to co-develop the module (January–October 2023). The module was formatted based on the NAVIGATE model of coordinated specialty care, and was informed by prior research on SRH and working group members' lived and clinical experiences. Results: The working group developed an interactive module covering five topics: (1) relationships, (2) sexual health, (3) reproductive health, (4) sexual orientation and gender identity, and (5) interpersonal violence. For each topic, client-facing materials (check-in questions, potential topics, worksheets) and clinician-facing materials (goals, handouts, suggested agendas, teaching strategies, tips for common challenges, evaluating gains and therapeutic goals, specific techniques, probes) were developed. SRH and mental health experts brought evidence-based content, and youth brought an affirming and youth-friendly lens to language and content. Conclusion: The developed module covers a broad array of SRH topics important to youth. If implementation is successful, the module could improve SRH-related well-being and outcomes for women, transgender, and gender-diverse youth with psychosis. Including youth with lived experience as collaborators enhanced inclusivity and relevance. Plain Language Summary Title: Addressing sexual and reproductive health for youth with early psychosis: description of a collaborative process to build a care module Plain Language Summary: Youth who experience psychosis (e.g., symptoms like delusions and hallucinations) are at higher risk for poor sexual and reproductive health outcomes (e.g., sexually transmitted infections). They are also at risk for not receiving needed sexual and reproductive health care. Early psychosis intervention programs provide structured care for youth with psychosis. They do not typically include sexual and reproductive health, missing an opportunity to improve sexual and reproductive health for youth with psychosis. This project aimed to develop a sexual and reproductive health clinical module for women, transgender, and gender-diverse individuals that can be used within early psychosis intervention programs. To develop the sexual and reproductive health module, we formed a working group that included youth with lived experience of psychosis, clinicians with knowledge about mental health and sexual and reproductive health, and researchers. The working group met regularly to design the module together. The module format was based on an existing early psychosis intervention program. The module content was based on research on sexual and reproductive health and working group members' experiences. The final module covered five sections: (1) relationships, (2) sexual health, (3) reproductive health, (4) sexual orientation and gender identity, and (5) interpersonal violence. The module included materials for clients (e.g., worksheets) and materials for clinicians (e.g., teaching strategies). Including youth with lived experience as collaborators made the module more inclusive and relevant. The module has the potential to improve sexual and reproductive health for women, transgender, and gender-diverse youth with psychosis, and more research is needed. [ABSTRACT FROM AUTHOR]
Abstract (French): Les personnes atteintes de psychose sont exposées à des risques sur le plan de la santé sexuelle et reproductive (SSR) et sont susceptibles de faire l'objet d'une prise en charge sous-optimale à cet égard. Les programmes d'intervention précoce en cas de psychose (IPP) permettent d'aborder la question de la santé sexuelle et reproductive tôt dans le cours de la maladie; pourtant, la SSR ne fait actuellement pas partie des soins courants offerts par les IPP. Ce projet visait à élaborer un module de SSR pour les femmes et les personnes transgenres et de diverses identités de genre, dans le cadre des soins prévus par les IPP. Pour élaborer le module de SSR, on a eu recours à un cadre de transfert des connaissances intégré, fondé sur une approche de recherche-action participative communautaire. Un groupe de travail regroupant des conseillers jeunesse (n = 3), un responsable de l'engagement des jeunes (n = 1) ayant une expérience vécue en matière d'intervention précoce en cas de psychose, des experts en SSR (n = 3) et en santé mentale (n = 3) ainsi que d'un chercheur (n = 1) a été constitué. Ce groupe de travail s'est réuni environ deux fois par semaine (de janvier à octobre 2023) pour élaborer le module de façon concertée. Le module a été conçu selon le modèle NAVIGATE de soins spécialisés coordonnés, sur la base de recherches antérieures sur la santé sexuelle et reproductive et des expériences vécues et cliniques des membres du groupe de travail. Le groupe de travail a élaboré un module interactif portant sur cinq sujets : 1) les relations, 2) la santé sexuelle, 3) la santé reproductive, 4) l'orientation sexuelle et l'identité de genre et 5) la violence interpersonnelle. Pour chacun de ces sujets, différents documents s'adressant à la clientèle ont été conçus (questions de vérification, sujets possibles, feuilles de travail); d'autres documents s'adressant aux cliniciens ont aussi été conçus (objectifs, documents à distribuer, suggestions d'ordre du jour, stratégies de formation, conseils pour gérer les difficultés courantes, évaluation des gains et des objectifs thérapeutiques, techniques précises, enquêtes). Les experts en SSR et en santé mentale ont fourni au projet du contenu fondé sur des données probantes, et les jeunes y ont apporté un langage et une perspective positifs et adaptés à la jeunesse. Le module élaboré couvre un large éventail de sujets relatifs à la SSR qui sont importants pour les jeunes. Si on réussit à implanter ce module, il pourrait améliorer le bien-être et la SSR des femmes, des personnes transgenres et des jeunes ayant diverses identités de genre atteints de psychose. L'inclusion dans le projet de jeunes ayant une expérience vécue a permis de gagner en inclusivité et en pertinence. [ABSTRACT FROM AUTHOR]
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Database: Psychology and Behavioral Sciences Collection
Description
Abstract:Background: Individuals with psychosis are at risk for adverse sexual and reproductive health (SRH) experiences, and for receiving suboptimal SRH care. Early psychosis intervention (EPI) programs offer an opportunity to address SRH early in the illness course, yet SRH is not currently part of routine EPI care. This project sought to develop a SRH module for women, transgender, and gender-diverse individuals for delivery within EPI care. Methods: To develop the SRH module, an integrated knowledge translation frame was used, informed by a community-based participatory action research approach. A working group was formed of diverse Youth Advisors (n = 3) and a Youth Engagement Specialist (n = 1) with lived experience with early psychosis, SRH experts (n = 3), mental health experts (n = 3), and research staff (n = 1). The working group met approximately biweekly to co-develop the module (January–October 2023). The module was formatted based on the NAVIGATE model of coordinated specialty care, and was informed by prior research on SRH and working group members' lived and clinical experiences. Results: The working group developed an interactive module covering five topics: (1) relationships, (2) sexual health, (3) reproductive health, (4) sexual orientation and gender identity, and (5) interpersonal violence. For each topic, client-facing materials (check-in questions, potential topics, worksheets) and clinician-facing materials (goals, handouts, suggested agendas, teaching strategies, tips for common challenges, evaluating gains and therapeutic goals, specific techniques, probes) were developed. SRH and mental health experts brought evidence-based content, and youth brought an affirming and youth-friendly lens to language and content. Conclusion: The developed module covers a broad array of SRH topics important to youth. If implementation is successful, the module could improve SRH-related well-being and outcomes for women, transgender, and gender-diverse youth with psychosis. Including youth with lived experience as collaborators enhanced inclusivity and relevance. Plain Language Summary Title: Addressing sexual and reproductive health for youth with early psychosis: description of a collaborative process to build a care module Plain Language Summary: Youth who experience psychosis (e.g., symptoms like delusions and hallucinations) are at higher risk for poor sexual and reproductive health outcomes (e.g., sexually transmitted infections). They are also at risk for not receiving needed sexual and reproductive health care. Early psychosis intervention programs provide structured care for youth with psychosis. They do not typically include sexual and reproductive health, missing an opportunity to improve sexual and reproductive health for youth with psychosis. This project aimed to develop a sexual and reproductive health clinical module for women, transgender, and gender-diverse individuals that can be used within early psychosis intervention programs. To develop the sexual and reproductive health module, we formed a working group that included youth with lived experience of psychosis, clinicians with knowledge about mental health and sexual and reproductive health, and researchers. The working group met regularly to design the module together. The module format was based on an existing early psychosis intervention program. The module content was based on research on sexual and reproductive health and working group members' experiences. The final module covered five sections: (1) relationships, (2) sexual health, (3) reproductive health, (4) sexual orientation and gender identity, and (5) interpersonal violence. The module included materials for clients (e.g., worksheets) and materials for clinicians (e.g., teaching strategies). Including youth with lived experience as collaborators made the module more inclusive and relevant. The module has the potential to improve sexual and reproductive health for women, transgender, and gender-diverse youth with psychosis, and more research is needed. [ABSTRACT FROM AUTHOR]
ISSN:07067437
DOI:10.1177/07067437261420713