Using videotelephony to support paediatric oncology-related palliative care in the home: from abandoned RCTto acceptability study.

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Bibliographic Details
Title:	Using videotelephony to support paediatric oncology-related palliative care in the home: from abandoned RCTto acceptability study.
Authors:	Bensink, M. E., Armfield, N. R., Pinkerton, R., Irving, H., Hallahan, A. R., Theodoros, D. G., Russell, T., Barnett, A. G., Scuffham, P. A., Wootton, R.
Source:	Palliative Medicine. Apr2009, Vol. 23 Issue 3, p228-237. 10p. 4 Diagrams, 6 Charts.
Subjects:	Clinical trials, Cost analysis, Palliative treatment, Isolation (Hospital care), Oncology, Pediatrics
Abstract:	Videotelephony (real-time audio-visual communication) has been used successfully in adult palliative home care. This paper describes two attempts to complete an RCT (both of which were abandoned following difficulties with family recruitment), designed to investigate the use of videotelephony with families receiving palliative care from a tertiary paediatric oncology service in Brisbane, Australia. To investigate whether providing videotelephone-based support was acceptable to these families, a 12-month non-randomised acceptability trial was completed. Seventeen palliative care families were offered access to a videotelephone support service in addition to the 24 hours 'on-call' service already offered. A 92% participation rate in this study provided some reassurance that the use of videotelephones themselves was not a factor in poor RCT participation rates. The next phase of research is to investigate the integration of videotelephone-based support from the time of diagnosis, through outpatient care and support, and for palliative care rather than for palliative care in isolation. [ABSTRACT FROM AUTHOR]
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Database:	Psychology and Behavioral Sciences Collection

Description
Abstract:	Videotelephony (real-time audio-visual communication) has been used successfully in adult palliative home care. This paper describes two attempts to complete an RCT (both of which were abandoned following difficulties with family recruitment), designed to investigate the use of videotelephony with families receiving palliative care from a tertiary paediatric oncology service in Brisbane, Australia. To investigate whether providing videotelephone-based support was acceptable to these families, a 12-month non-randomised acceptability trial was completed. Seventeen palliative care families were offered access to a videotelephone support service in addition to the 24 hours 'on-call' service already offered. A 92% participation rate in this study provided some reassurance that the use of videotelephones themselves was not a factor in poor RCT participation rates. The next phase of research is to investigate the integration of videotelephone-based support from the time of diagnosis, through outpatient care and support, and for palliative care rather than for palliative care in isolation. [ABSTRACT FROM AUTHOR]
ISSN:	02692163
DOI:	10.1177/0269216308100251